Patient Registry Privacy Statement
Thank you for taking the time to complete the patient registry. We value your participation and privacy.
Your inclusion in this registry will aid our efforts to improve research on cluster headaches.
Your information will not be shared with any other group or organization for any purpose. Our goal is to build a database of people for possible involvement in future research and clinical studies of cluster headaches.
In the event that you may meet the requirements for a proposed study, only your contact information may be shared with the administrators of the clinical study.
You may also be contacted by Clusterbusters solely for the purposes of informing you of upcoming clinical studies and how you may contact the lead investigators of the study.
As we are involved in research on an international basis, this survey is open to people worldwide. We encourage anyone living with cluster headaches to participate.
The formation and maintenance of this registry, its use, and all data are administered by the Clusterbusters team and members of its Medical Advisory Board. Its administration and all privacy matters shall meet or exceed HIPPA regulations.